Patient Advocate, United States
Having been diagnosed with Glycogen Storage Disease Type Ia in 1979, I have learned and overcome various medical treatments to live a normal adult livelyhood at the young vibrant age of 43. Over the past few years, I have served as an Advisory Board member for Ultragenyx in hopes...
Read More →
Founder and Chief Executive Officer, The Kith Collective, LLC, United States
Kim McCleary has been at the forefront of patient engagement for more than 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications...
Read More →
Vice President of Global Patient Advocacy and Patient Engagement, Ultragenyx, United States
Jessica leads Global Patient Advocacy and Patient Engagement at Ultragenyx, where she and her passionate team forge strategic alliances with diverse patient advocacy groups to understand patient and caregiver perspectives across the drug discovery continuum. Her passion is building...
Read More →
Director, Patient Advocacy, Ultragenyx, United States
As Director of Patient Advocacy at Ultragenyx, Kristin partners with the rare disease community and strives to make a positive and meaningful difference in the lives of patients, caregivers and families. She partners closely with internal functions such as clinical development, discovery...
Read More →
Create a custom schedule.
Take it with you on mobile.
Get listed in the directory.
