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Monday, June 20 • 4:00pm - 5:00pm
#136: Developing and Implementing a Strategic Framework to Guide Patient Engagement

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Component Type: Forum
Level: Intermediate
CE: ACPE 1.00 Knowledge UAN: 0286-0000-22-529-L04-P ; CME 1.00; RN 1.00

Strategic patient engagement helps ensure clinical development addresses a community’s most important needs. Presenters will describe examples of development and implementation of a strategic, flexible, and iterative framework for patient engagement.

Learning Objectives

Discuss an approach to establish a company-wide culture of patient inclusion in drug development; Identify ways to build recognition of patient engagement, patient-centered activities, and patient-focused drug development; Explore strategies to engage key stakeholders' Describe a process to establish a systematic and strategic approach to patient involvement across a compound’s life cycle.


Kristin Voorhees, MA


K. Kimberly McCleary

Adam Diamond

Jessica Riviere, MHS

avatar for Adam Diamond

Adam Diamond

Patient Advocate, United States
Having been diagnosed with Glycogen Storage Disease Type Ia in 1979, I have learned and overcome various medical treatments to live a normal adult livelyhood at the young vibrant age of 43. Over the past few years, I have served as an Advisory Board member for Ultragenyx in hopes... Read More →
avatar for K. Kimberly McCleary

K. Kimberly McCleary

Founder and Chief Executive Officer, The Kith Collective, LLC, United States
Kim McCleary has been at the forefront of patient engagement for more than 30 years. She is a nationally regarded subject matter expert on patient-focused medical product development, patient-centered benefit-risk assessment, and organizational change. Kim has authored scores of publications... Read More →
avatar for Jessica Riviere

Jessica Riviere

Vice President of Global Patient Advocacy and Patient Engagement, Ultragenyx, United States
Jessica leads Global Patient Advocacy and Patient Engagement at Ultragenyx, where she and her passionate team forge strategic alliances with diverse patient advocacy groups to understand patient and caregiver perspectives across the drug discovery continuum. Her passion is building... Read More →
avatar for Kristin Voorhees

Kristin Voorhees

Director, Patient Advocacy, Ultragenyx, United States
As Director of Patient Advocacy at Ultragenyx, Kristin partners with the rare disease community and strives to make a positive and meaningful difference in the lives of patients, caregivers and families. She partners closely with internal functions such as clinical development, discovery... Read More →

Monday June 20, 2022 4:00pm - 5:00pm CDT
Room 179 McCormick Place 2301 South Indiana Avenue Gate 40 Chicago, IL 60616
  05: Patient Engagement, Forum