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Thursday, June 29 • 8:30am - 9:30am
The Value of Patient-Centric Communication Strategies

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Component Type: Session
Level: Intermediate

Communication strategies that are patient centric, offered in plain language, delivering meaningful content and recognizing the contribution of study participants can deliver improved outcomes for all stakeholders. This session will highlight presentations that offer best practices for going beyond requirements in communicating study information and results to study participants and include a moderated discussion and Q&A.

Learning Objectives

Recognize opportunities to provide patient centric communications throughout drug development; Discuss ways to express gratitude to study participants;vDiscuss strategies for ensuring your study materials are in plain language and providing meaningful content (e.g., recruitment notices, informed consent documents and result communications).

Chair

Jennifer Farmer, MS

Speaker

Returning Results to Patients: Not Just a Regulatory Requirement with a Grace Period
Jill McNair, MBA

Developing an Attitude of Gratitude: The Importance of Showing Gratitude to Clinical Trial Participants
Peter Schaeffer, MBA, PMP

Examining the Value and Utility of Clinical Trial Listings on ClinicalTrials.Gov for Patients and the Public
Kenneth Getz, MBA


Speakers
avatar for Jennifer Farmer

Jennifer Farmer

Chief Executive Officer, Friedreich's Ataxia Research Alliance (FARA), United States
Jennifer Farmer is the Chief Executive Officer of the Friedreich’s Ataxia Research Alliance (FARA). She is one of the founders and the coordinator for the Collaborative Clinical Research Network in FA. In her current role at FARA as CEO, she helps to carry out the strategic mission... Read More →
avatar for Kenneth Getz

Kenneth Getz

Executive Director/Professor, Tufts CSDD; Founder/Board Chair, CISCRP, Center For the Study of Drug Development, United States
Ken Getz is the Executive Director and a Professor at the Tufts Center for the Study of Drug Development, Tufts University School of Medicine. He is also the chairman of CISCRP – a nonprofit organization that he founded to educate and raise public and patient awareness of the clinical... Read More →
avatar for Jill McNair

Jill McNair

Chief Growth Officer, CISCRP, United States
Jill has worked in the non-profit sector for over 20 years. She is the Senior Director, Health Communication Services at CISCRP. In this role, she oversees a team dedicated to helping sponsor companies provide trial results summaries in plain language to study volunteers. She is passionate... Read More →
PS

Peter Schaeffer

Digital and Process Optimization Leader, GlaxoSmithKline, United States
Pete Schaeffer has worked in the Pharmaceutical industry for approximately 20 years in both the Pre-Clinical and Clinical areas. During this time, he has worked in roles to improve performance and decision making, led continuous improvement programs and collaborated with teams to... Read More →

Thursday June 29, 2023 8:30am - 9:30am CDT
TBD Boston Convention and Exhibition Center 415 Summer Street, Boston, MA 02210 USA
  05: Patient Engagement, Session